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PUBLIC HEALTH MATTERS |
Sofia Gruskin is with the Program on International Health and Human Rights, François-Xavier Bagnoud Center for Human Rights, and Allison Smith-Estelle is a doctoral candidate in the Department of Population and International Health, Harvard School of Public Health, Boston, Mass. Karen Plafker is with the Public Health Program, Open Society Institute, New York, NY.
Correspondence: Requests for reprints should be sent to Sophia Gruskin, JD, MIA, 651 Huntington Ave, Boston, MA 02115 (e-mail: sgruskin{at}hsph.harvard.edu).
| ABSTRACT |
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This article examines the utility of a health and human rights framework for conceptualizing and responding to the causes and consequences of substance use among young people. It provides operational definitions of "youth" and "substances," a review of current international and national efforts to address substance use among youths, and an introduction to human rights and the intersection between health and human rights. A methodology for modeling vulnerability in relation to harmful substance use is introduced and contemporary international and national responses are discussed.
When governments uphold their obligations to respect, protect, and fulfill human rights, vulnerability to harmful substance use and its consequences can be reduced.
| INTRODUCTION |
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Public Letter to UN Sec-Gen Kofi Annan1
Explicit attention to the intersection of health and human rights can help reorient thinking about major global health challenges and, while contributing to broadening human rights thinking and practice, provide a solid approach for improving the lives of individuals.2 This intersection offers a framework for optimizing the contributions of both public health and human rights to conceptualizing the determinants of health and to thinking systematically about policy and program responses that promote both health and rights.
Substance use among youths is a worldwide epidemic. Young people start to use substances, singly or in combination, at early ages, and they report many different reasons for using them. Despite the harm that substances can and do cause, effective responses to substance use, and especially to harmful use among young people, remain limited. In this article we begin with brief discussions of concepts that often seem to warrant no definition: Who are "young people"? What "substances" are we talking about? What sort of substance use demands attention from public health and human rights perspectives and practitioners?
This discussion is followed by an introduction to human rights, particularly those of young people, and a discussion of the intersection of health and human rights in relation to substance use. These definitions and introductions are critical to ensuring a common conceptual starting point before we present a methodology for modeling vulnerability to poor health outcomes such as harmful substance use. The model illustrates how vulnerability to harmful substance use can be linked to the extent to which segments within the youthful population enjoy their human rights. The complement of this argument, discussed next, is that respecting, protecting, and fulfilling the rights of all young people can reduce their vulnerability to ill health, including the risk of harmful substance use.
We then review current international and national efforts to address substance use by youths and, using the vulnerability model proposed, suggest that these efforts are not only insufficient to ensure the human rights of young people as they relate to substance use but in some cases contribute to the violation of their rights. We conclude by suggesting ways in which human rights can help frame and shape more effective and comprehensive responses to substance use. While it is our contention that this approach is relevant to a variety of health concerns, substance use by young people is used as the example because it highlights the complexities that application of this model bring out and because the topic is of concern for anyone interested in the policy and program responses focused on youths more generally that exist worldwide.
| THE DIVERSITY OF YOUTHS |
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This is not an exhaustive list, nor does it specify how these different components of personal and social identity play out in different national and cultural contexts. However, it is crucial to recognize that it is often these factors, singly or in combination, that exacerbate or reduce young people's vulnerability to harmful substance use. The failure of policymakers to see young people in all their diversity and the exclusion of youths until some distant, arbitrary age of majority in political and social policy processes mean that the ways in which young people's rights are violatedincluding discrimination; abuse at home, at work, and on the street; separation from family; lack of educational opportunities or appropriate alternativescan be underestimated or ignored. This paves the way for inadequate and inappropriate responses to preventing substance use and to reducing harm and treating use when it does occur.
| DEFINING "SUBSTANCES" OF CONCERN |
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It is important to recognize how "substances" are both lumped together and distinguished from each other in seemingly arbitrary ways that obscure the actual dangers of substance use, how these dangers differ from substance to substance and from user to user, and why. A review of the documents58,11 reveals interesting patterns. For example, cannabis, which is known to have low acute toxicity, require less treatment, and cause fewer deaths than many other substances, is often discussed together with more toxic, physically addictive, and potentially deadly substances such as cocaine, heroin, and Ecstasy. Alcohol, on the other hand, is often completely ignored, although it is the drug of choice among vast numbers of young people, has been reported to cause work-related problems and injuries more often than other substances,6 and in some countries causes more deaths and injuries among young people than any other substance.
| IS ALL SUBSTANCE USE HARMFUL? |
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The challenge of defining what, exactly, is unacceptable about substance use, in both public health and human rights terms, has not been adequately taken up by policymakers, researchers, or advocates of drug control. In one sense, virtually all use is harmful in some way. But at what point public health and human rights practitioners are called upon to prevent use, reduce harm, and treat young users will vary in response to a range of evolving social constructs, including what is considered to constitute appropriate behavior or free will, as well as economic imperatives, such as scarce resources and competing priorities.
In this article, we would like to highlight 2 questions regarding harm. The first asks why young people engage in substance use, noting that use, in fact, is a response to a range of very different issues. Although some youths, primarily in more developed countries but increasingly in less developed countries, use drugs, alcohol, and tobacco for social reasons or for "fun" (such users are often referred to in substance abuse literature as "socially integrated" youths11), other young people within the same environments may use these substances to work longer hours, enhance work or school performance or cope with academic pressure, alleviate hunger, reduce physical or emotional pain, fend off sleep, help to induce sleep, or lose weight.11,1518 Others may use substances as a strategy to cope with war, unemployment, neglect, violence, homelessness, or sexual abuse.
The second question asks about the individual impact of substance use: How is the health and well-being of young users affected by their use? Harm could be defined in this case in a variety of ways, including dependence, overdose, HIV infection, sexual exploitation, inability to function within society, or involvement in criminal activity.
These questions are important because they draw attention to the inadequacy of discussing these issues for the sake of policy and program development without paying attention to assumptions and specific differences, and because they seek to clarify the range of issues that public health and human rights practitioners should address in their efforts to respond to substance use by young people.
| DEFINING HUMAN RIGHTS |
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Beyond these hopeful aspirations, human rights offers a framework for conceptualizing and responding to the causes and consequences of public health issues. With centuries of philosophical and political thought to support it, the Universal Declaration of Human Rights was adopted by the UN in 1948 as a universal, common standard of achievement for all peoples and nations. Since then, a range of human rights instruments that further elaborate the rights set out in the Universal Declaration have been adopted and ratified by the governments of the world.2128 As treaties, these documents form part of international law, which confers binding legal obligations on those states that ratify them.
Human rights include civil and political rights, such as the right to be free from torture and arbitrary execution, the right to information, and the right to free expression. They also include economic, social, and cultural rights, such as the right to an adequate standard of living, the right to health, and the right to education. The right to be free from discrimination is understood to be overarching and relevant to all rights. The content of these rightshow they can be translated from legal language into actioncontinues to be developed in countries throughout the world.
This process of turning legal language into policy and program responses useful for health at the country level began to be widely shared in the form of the final documents that emerged from a series of international conferences held during the past decade (World Conference on Human Rights, Vienna, 1993; International Conference on Population and Development, Cairo, 1994; World Summit for Social Development, Copenhagen, 1995; Fourth World Conference on Women, Beijing, 1995; UN Conference on Human Settlements, Istanbul, 1996).
| RESPECT, PROTECT, FULFILL |
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The obligation to protect human rights means that governments are required to prevent rights violations by nonstate actors, and, when they fail to prevent such violations, to ensure that there is a legal means of redress that people know about and can access. Protecting young people's right to life means, for example, that the government is required to prevent the vigilante murder of street children assumed to be substance users. Should such killings occur, the state is required to conduct a full investigation, prosecute the accused, conduct a fair trial, and punish those found guilty.
The obligation to fulfill human rights means that governments are required to take positive steps, including administrative, legislative, budgetary, judicial, and other measures, to ensure the full realization of rights. Offering and ensuring access to appropriate information, outreach, and service delivery programs aimed at preventing, reducing the harm of, or treating substance use by young people is one way states can fulfill young people's rights to health and to information.
All areas of government, including health ministries, are responsible for respecting, protecting, and fulfilling human rights in the work they do. Consequently, rights must be explicitly incorporated into the work of public health. States' compliance with their human rights obligations is formally evaluated by international monitoring bodies in periodic sessions. Increasingly, monitoring and advocacy activities are conducted by nongovernmental organizations, the media, and private individuals.
| HUMAN RIGHTS AND YOUNG PEOPLE |
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Moreover, in 1990, the first human rights document to focus specifically on the rights of childrenthe Convention on the Rights of the Childcame into being.24 The convention distinguishes itself from earlier documents in its scope and in its reconceptualization of children and their position in society, particularly in its explicit articulation of the standing of children in terms of their rights, rather than as objects of charity or goodwill.31
The Convention on the Rights of the Child is a particularly powerful document. Adopted by the UN General Assembly and opened for signature by governments in late 1989, the convention entered into force less than a year later, more quickly than any other human rights treaty. Currently, the convention has has been ratified by every government in the world except those of the United States and Somalia.24 As such, and by defining "the child" as every human being younger than 18 years, the convention offers further protection to a large proportion of those whom UNICEF identifies as "young people."
| HEALTH, HUMAN RIGHTS, AND SUBSTANCE USE |
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Put succinctly, the violation or neglect of human rights can increase the risk of poor health outcomes. Applied to the issues of concern here, a health and human rights framework would illustrate that the violation or neglect of young people's rights, a human rights concern in and of itself, can increase the risk of substance use, especially harmful use. Such violations would include, for example, the failure to respect, protect, and fulfill young people's rights to information, education, recreation, and an adequate standard of living.
It is important to note that, conversely, substance use by young people may further negatively affect the extent to which their rights are respected, protected, and fulfilled. Prematureand avoidablemorbidity and mortality, along with the marginalization that stems from harmful use, are manifestations of the violation or neglect of a range of rights contained in the human rights treaties, including the right to nondiscrimination and the right to health.
It is also important to note that although violation or willful neglect of rights is never permissible, there may be instances where it is legitimate for a government to restrict the rights of an individual, whether child or adult. For example, imprisonment of an individual who has been tried and found guilty of a crime is ordinarily considered a legitimate restriction on the right to freedom of movement. Such restrictions must comply with strict criteria to be considered legitimate under human rights law.32
The relationship between health and human rights is thus dynamic and mutually reinforcing. By taking steps to respect, protect, and fulfill the rights of young people, governments can reduce both the risk of substance use and the harm that it causes.
| MODELING VULNERABILITY |
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A methodology for modeling vulnerability, developed in the context of understanding the relationship between human rights and HIV/AIDS,3537 is adapted here to explore the relationship between human rights and substance use by young people. This model starts where traditional models of risk leave off, developing the concept of vulnerability to more fully explain the factors leading to risk and risk-taking behaviors and thereby highlighting a range of necessary policy and programmatic responses. A health and human rights framework can then be used to guide the design of responses to eliminate or ameliorate sources of vulnerability and, ultimately, risk.
Drawing on the definition used in the HIV/AIDS literature, vulnerability is understood as a limitation on the extent to which people are capable of making and effectuating free and informed decisions.37 Greater vulnerability is likely to lead to greater involvement in riskgenerating situations and risk-taking behaviors, both of which increase the risk of poor health outcomes. The concept of vulnerability expands the traditional risk factor approach by illuminating the context in which individual experience is embedded, thereby opening the door to thinking more broadly about the causes of poor health outcomes and about appropriate public health responses. The components of vulnerability (discussed below) are, in turn, shaped by the extent to which human rights are realized.
Using the concept of vulnerability expands the range of risk factors considered relevant to a given health outcome (Figure 1
). In addition to traditional risk factors, the concept goes further to include other individual, programmatic, and societal factorssuch as substance use in the family or community; family violence and other forms of psychological, physical, or sexual abuse and exploitation; inadequately targeted care and support programs; education and poverty levels; employment possibilities; and homelessnessto explain harmful substance use.
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Program-related vulnerability considers the impact of health policies and programs on risk-taking behavior, risk-generating situations, and, therefore, on risk for harmful use. For example, drug use prevention programs that ignore the existence of, or variations in, young people and therefore their particular vulnerabilities to use38 can be understood to be an element of program-related vulnerability. The fragile legal status and social acceptability of some prevention and treatment initiatives themselves, such as needle exchange programs, can also be seen to exacerbate vulnerability.
Societal vulnerability is determined by the social structures that have the power to influencepositively or negativelyrisk-generating situations, risk-taking behavior, and, ultimately, risk. These structures include socioeconomic conditions, the social environment35 and infrastructure, political participation, and cultural norms. For example, members of a stigmatized population group, whether because of poverty, ethnic group, or geographic location, may find their risk of harmful use increased because of their societal vulnerability.
Individual, program-related, and societal vulnerability interact and reinforce each other in ways that can increase the probability that young people will find themselves in riskgenerating situations (e.g., homelessness or sexual exploitation) and engage in risk-taking behaviors (e.g., substance use), thereby increasing their risk of poor health outcomes. This model highlights, for example, the fact that ongoing marginalization of the poor may result in scarce resource allocations to certain communities, leading to inadequate educational and employment opportunities, few prevention programs for young people, ignorance or lack of prioritization of the potential dangers of substance use, and reliance for economic or social support on other young people who sell or use drugs.
Precisely because each of the components of this model reinforces the others, rightspromoting interventions at any point can have a positive, multiplier effect. When interventions are consciously made at several points, the potential effect may be even greater. As a result, it is postulated that when governments respect, protect, and fulfill the range of human rights, young people's ability to mediate these different sources of vulnerability can be increased, reducing both risk and harm. When these efforts are complemented by efforts by health professionals and others, the impact may be considerable.
| INTERNATIONAL RESPONSES |
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The international drug control system is governed by a series of international treaties that require governments to exercise control over production and distribution of narcotic and psychotropic substances and to take steps to combat drug abuse and illicit trafficking.4,9,10 The UN Commission on Narcotic Drugs is the main policy-making body for all matters of international "drug control." All UN drug control activities are coordinated by the UN Drug Control Program, which was established in 1990. The UN Drug Control Program is financed through both the regular budget of the UN and a voluntary funded budget and is supported mainly through government contributions.
The system of administrative controls and penal sanctions outlined in the international drug treaties is seen largely to constitute prevention of substance use.39 The 1961 and 1971 conventions do, however, note that states parties "may provide, either as an alternative to conviction or punishment or in addition to punishment, that such abusers undergo measures of treatment, education, after-care, rehabilitation and social reintegration [emphasis added]."4,9 The language and thrust of the 1988 convention with respect to abuse is similar.10 With respect to prevention, the 1961 and 1971 conventions address measures to be taken against the abuse of psychotropic substances. The language in the 2 conventions is once again parallel and reads, "The Parties shall take all practicable measures for the prevention of abuse of psychotropic substances and for the early identification, treatment, education, after-care, rehabilitation and social reintegration of the persons involved and shall coordinate their efforts to these ends [emphasis added]."4,9,10 While it could be argued that language relating to prevention of harmful drug use is more sensitive to human rights than that dealing with punishment, what is important to note is that penal sanctions remain the primary mechanism for dealing with prevention and with people who use drugs, while all servicestreatment, education, rehabilitation, after-care and social reintegrationare optional, despite the fact that human rights obligates governments to promote and protect the rights of individuals living within their borders, including the rights to health and education.40
Despite evidence that years of expensive supply reduction efforts have been of limited effectiveness, almost universally the focus remains on reducing the availability of illicit drugs through law enforcement measures, with relative neglect of demand and harm reduction approaches.41,42 Wodak writes:
Over the last half century, drug policy has increasingly depended on efforts to restrict illicit drug supplies. Yet global drug production has grown steadily, accompanied by a global increase in consumption (most marked recently in developing countries). These trends have occurred while illicit drug law enforcement has progressively intensified in almost all countries with enlarged customs bureaus and police drug squads, more severe penalties for drug offense, and substantially increased funding for all components focusing on reducing supply.42
The allocation of spending for supply and control activities vs demand reduction activities provides an indication of current global priorities. In 1996 and 1997, the UN Drug Control Program budgeted 49% of its funds for supply and control activities globally, while demand reduction activities received only 31% of the overall budget. Multisector activities, including policy planning, development of master plans, and institutional strengthening, were allocated the remaining 20% of funds.43
Such a focus implicates international drug agencies in the neglect of human rights. In many places, funding for drug efforts comes from international sources, which help establish the priorities for countries supported by these funds. It is our contention that the UN Drug Control Program and other drug agenciesby focusing on the punishment, instead of treatment, of substance users, and by focusing on finding those who make and traffic in drugs instead of supporting people, especially young people, who are vulnerable to harmful substance useinadvertently support countries in neglecting their human rights obligations.
There is no doubt that the intention of the international community is to decrease substance use in the world. Yet the priorities put into place, budgetary allocations provided, and methods currently used to respond to that goal must be examined more closely for their integration of human rights principles.
| NATIONAL RESPONSES |
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Tables 1 and 2![]()
provide a global snapshot highlighting the differences in current national approaches. Table 1
provides a brief introduction to the existence and current implementation of laws and policies related to illegal substances; Table 2
presents a brief review of approaches to prevention and treatment. The countries chosen for inclusion are not meant to be representative of regions or continents, but, in providing illustrations of different approaches to substance law and policy, to raise questions concerning the apparent arbitrariness of the ways in which responses to substance use are designed and implemented.
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| LAWS AND POLICIES REGARDING PREVENTION AND TREATMENT |
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Prevention efforts targeting youth appear to be focused primarily around schools. In Thailand, drug awareness literature has been integrated into school curriculums at all levels, while in the Czech Republic, an intensive education program has been implemented in secondary schools.51 Although these programs are extremely important, they do not serve those who do not attend school or who cannot read.
The general deterioration of the public health service in many countries has also resulted in limited drug care and treatment (Table 2
). Many countries, however, have initiated needle and syringe exchange programs to curb the spread of infectious diseases, including HIV/AIDS. In Brazil and elsewhere, no evidence has been found that such programs increase the frequency of drug injection or the number of injectors.52,53 Despite the importance and success of this public health intervention, some countries have banned the implementation of needle exchange programs. Other countries, the United States among them, have prohibited federal funding but allow local communities to make their own decisions about whether to implement needle exchange.54
| THEORY INTO PRACTICE |
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Explicit attention to human rights can suggest different ways of thinking about causes, and thus can suggest responses that can help reduce societal, program-related, and individual vulnerability to substance use, especially harmful use. Explicit attention to human rights serves the dual objective of respecting, protecting, and fulfilling the rights of young people and promoting and protecting their health. In addition, it points to the need to think about immediate action as well as longer-term objectives and strategies. Finally, while in the first instance human rights entails government obligations, human rights also offers standards that can orient (and, in fact, already reflect) public health work by private actors, such as nongovernmental organizations and others concerned with the health and well-being of young people.
Table 3
illustrates how those working in prevention, treatment, and reduction of young people's vulnerability to substance use may think about human rights obligations vis-à-vis young people. The horizontal axis of the matrix is broken down by the range of governmental obligationsrespect, protect, and fulfillthat must be satisfied to ensure that any right is fully realized. The vertical axis is broken down by the different policy and program responses required for 3 interrelated and equally important aspects of an individual's experience with substance use.
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Examples provided earlier demonstrate the usefulness of such a matrix. Despite scientific evidence that needle exchange programs reduce the spread of HIV and do not lead to increased drug use, the United States has banned the use of federal funding for such programs.55 This ban could increase vulnerability to negative health outcomes and could be understood to represent a breach of the governmental obligation to respect the human right to health. The pressure that doctors in Ethiopia feel to report anyone seeking treatment to the police has an impact on the government's ability to protect human rights and ultimately may have an impact on the health of addicts, many of whom may choose not to seek treatment for fear of incarceration. Nepal, on the other hand, has taken steps to fulfill its obligations by progressively increasing the number of needle exchange programs that exist within the country.
This matrix offers a critical approach for assessing the design and implementation of new and existing policies and programs and for addressing their practical implications from both public health and human rights perspectives. Ultimately, such an analysis could be extended to examine how approaches recognized as best health practice within each of these domains could contribute to advancing human rights in relation to each level of governmental obligation. Through this approach, it is hoped that responses to decreasing harmful substance use at the national and international levels could be enhanced.
| MOVING FORWARD |
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Second, those in both governmental and nongovernmental sectors who are working in research related to substance use among young people can ask what new questions about substance use and abuse by young people are raised by the vulnerability model and the proposed framework.
Third, health policymakers, service providers, and others concerned with substance use among young people can use this framework to evaluate existing public health policies and programs, especially those not specifically dedicated to health but which may have a direct bearing on the frequency and distribution of substance use by young people (e.g., education, income generation, housing and infrastructure, rural development), in light of the obligations set forth above. Such an evaluation can serve as a tool for advocating, developing, and implementing new prevention policies in various sectors as well as for revising existing ones.
Finally, by identifying gaps in governments' compliance with their human rights obligations, nonstate actorsall those working in the nongovernmental sector as advocates, researchers, and service providerscan apply the human rights framework to their work and see how their work may complement state action in promoting and protecting both the health and rights of young people.
It is clear that for efforts focusing on reducing harmful substance use among youth to be successful and for human rights to be promoted and protected, functioning legal systems must be in place. The lack of a legal framework in many countries undermines domestic and international efforts to control drugs and to provide prevention and treatment services to the people. If good laws are in place but are not enforced or are enforced selectively, individuals may not feel protected by them, especially when the laws address what many see as private behavior. Governments, with the help of international agencies, must not only define what is legal and illegal but must put into place clear mechanisms to safeguard the rights of individuals in relation to the exercise of these laws. This assistance may include building and strengthening institutional capabilities to ensure due process and effective remedies.
| CONCLUSION |
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We have sought to demonstrate that if the rights of young people are respected, protected, and fulfilled, their vulnerability to and risk for substance use, especially harmful use, can be reduced. We not only offer the theoretical basis for using human rights in analysis but, by offering practical tools for its application, aim to show ways in which a combined health and human rights approach can be useful to concerned policymakers, health professionals, and others. We hope that the discussion presented here can serve as a next step in broadening the dialogue on new ways to promote and protect the health of young people that are effective, as well asor precisely because they areconsistent with human rights principles.
| Footnotes |
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Accepted for publication August 17, 2001.
| References |
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2. Mann J, Gostin L, Gruskin S, Brennan T, Lazzarini Z, Fineberg H. Health and human rights. Health Hum Rights. 1994;1:623.[Medline]
3. Youth HealthFor a Change: A UNICEF Notebook on Programming for Young People's Health and Development. New York, NY: UNICEF; 1997.
4. Convention on Psychotropic Substances, 1971. Available at: http://www.incb.org/e/conv/1971/articles.htm. Accessed October 8, 2001.
5. World Drug Report Highlights. Vienna, Austria: United Nations Drug Control Program; 1997.
6. The Social Impact of Drug Abuse. Vienna, Austria: United Nations Drug Control Program, 1995. Also available (in PDF format) at: http://www.undcp.org/technical_series_1995-03-01_1.html. Accessed October 5, 2001.
7. Youth and Drugs: A Global Overview. Report of the Secretariat. New York, NY: United Nations Economic and Social Council; 1999.
8. United Nations Drug Control Program, Drugs and Development. UNDCP Technical Series1994/06/01. Available (in PDF format) at: http://www.odccp.org:80/technical_series_1994-06-01_1.html. Accessed October 5, 2001.
9. Single Convention on Narcotic Drugs, 1961, as amended by the 1972 Protocol Amending the Single Convention on Narcotic Drugs, 1961. Available at: http://www.incb.org/e/conv/1961/. Accessed October 8, 2001.
10. United Nations Convention Against Illicit Traffic in Narcotic Drugs and Psychotropic Substances, 1988. Available at: http://www.incb.org/e/conv/1988/. Accessed October 8, 2001.