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July 2002, Vol 92, No. 7 | American Journal of Public Health 1070-1073
© 2002 American Public Health Association

HEALTH POLICY AND ETHICS FORUM

Nontherapeutic Research with Children: Grimes v Kennedy Krieger Institute

Leonard H. Glantz, JD

Leonard H. Glantz is Professor of Health Law at the Boston University School of Public Health. Requests for reprints should be sent to Leonard H. Glantz, JD, Boston University School of Public Health, 715 Albany St T-3, Boston, MA 02215 (e-mail: lglantz{at}bu.edu).

Research with young children raises difficult issues of law and ethics. A recent Maryland case, Grimes v Kennedy Krieger Institute, Inc, appears to impose restrictive rules on research with children when the subjects are put at risk but cannot derive direct benefit from their involvement in the research project. This case exemplifies the tension that exists between the goal of science to increase knowledge and the protection of the rights and welfare of nonconsenting research subjects. While some language in the opinion may be difficult to understand or apply, for the most part the case reflects the problems other courts and ethicists have had in delineating the role of children in "nontherapeutic" research. (Am J Public Health. 2002;92:1070–1073)




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