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RESEARCH AND PRACTICE |
Maryam Navaie-Waliser and Penny H. Feldman are with the Center for Home Care Policy and Research, Visiting Nurse Service of New York, NY. David A. Gould, Carol Levine, and Alexis N. Kuerbis are with the United Hospital Fund, New York, NY. Karen Donelan is with the Department of Health Policy and Management, Harvard School of Public Health, Boston, Mass.
Correspondence: Requests for reprints should be sent to Maryam Navaie-Waliser, DrPH, Center for Home Care Policy and Research, Visiting Nurse Service of New York, 5 Penn Plaza, 11th Floor, New York, NY 10001 (e-mail: maryam.navaie{at}vnsny.org).
Objectives. This study examined the characteristics, activities, and challenges of high-risk informal caregivers.
Methods. Telephone interviews were conducted with a nationally representative cross-section of 1002 informal caregivers. Vulnerable caregivers with poor health or a serious health condition were compared with nonvulnerable caregivers.
Results. Thirty-six percent of caregivers were vulnerable. Compared with nonvulnerable caregivers, vulnerable caregivers were more likely to have difficulty providing care, to provide higher-intensity care, to report that their physical health had suffered since becoming a caregiver, to be aged 65 years or older, to be married, and to have less than 12 years of education.
Conclusions. Reliance on informal caregivers without considering the caregiver's ability to provide care can create a stressful and potentially unsafe environment for the caregiver and the care recipient.
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