| HOME | HELP | FEEDBACK | SUBSCRIPTIONS | ARCHIVE | SEARCH | TABLE OF CONTENTS |
|
|
|
|||||||
|
|||||||||
COMMUNITY-BASED PARTICIPATORY RESEARCH |
Ronald P. Strauss is with the Department of Dental Ecology, School of Dentistry; the Department of Social Medicine, School of Medicine; and the Center for AIDS Research, University of North Carolina at Chapel Hill. At the time of the study, Sohini Sengupta was, and Susan M. Kegeles is, with the Center for AIDS Prevention Studies, University of California, San Francisco. Sandra Crouse Quinn is with the Department of Health Services Administration, University of Pittsburgh, Pittsburgh, Pa. Jean Goeppinger is with the Schools of Nursing and Public Health, University of North Carolina at Chapel Hill. Cora Spaulding is with the Department of Family Medicine, School of Medicine, University of North Carolina at Chapel Hill. Greg Millett is with the Department of Health Education, University of Alabama in Birmingham.
Correspondence: Requests for reprints should be sent to Ronald P. Strauss, DMD, PhD, School of Dentistry, University of North Carolina at Chapel Hill, CB #7450, Chapel Hill, NC 27599-7450 (e-mail: ron_strauss{at}unc.edu).
Ethical research involving human subjects mandates that individual informed consent be obtained from research participants or from surrogates when participants are not able to consent for themselves. The existing requirements for informed consent assume that all study participants have personal autonomy; fully comprehend the purpose, risks, and benefits of the research; and volunteer for projects that disclose all relevant information. Yet contemporary examples of lapses in the individual informed consent process have been reported.
The authors propose the use of community advisory boards, which can facilitate research by providing advice about the informed consent process and the design and implementation of research protocols. These activities could help reduce the number of individual informed consent lapses, benefiting study participants and the scientific integrity of the research in question.
This article has been cited by other articles:
|
|
 |
|
  D. Buchanan, S. Sifunda, N. Naidoo, S. James, and P. Reddy Assuring Adequate Protections in International Health Research: A Principled Justification and Practical Recommendations for the Role of Community Oversight Public Health Ethics, November 1, 2008; 1(3): 246 - 257. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 S. Crouse Quinn Crisis and Emergency Risk Communication in a Pandemic: A Model for Building Capacity and Resilience of Minority Communities Health Promot Pract, October 1, 2008; 9(4_suppl): 18S - 25S. [Abstract] [PDF]
|
|
|
|
 |
|
 S. F Morin, S. Morfit, A. Maiorana, A. Aramrattana, P. Goicochea, J. M. Mutsambi, J. L. Robbins, and T A. Richards Building community partnerships: case studies of Community Advisory Boards at research sites in Peru, Zimbabwe, and Thailand Clinical Trials, April 1, 2008; 5(2): 147 - 156. [Abstract] [PDF]
|
|
|
|
 |
|
 A. J. Silvestre, J. B. Hylton, L. M. Johnson, C. Houston, M. Witt, L. Jacobson, and D. Ostrow Recruiting Minority Men Who Have Sex With Men for HIV Research: Results From a 4-City Campaign Am J Public Health, June 1, 2006; 96(6): 1020 - 1027. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 M. W. Foster and R. R. Sharp Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations. Hum. Mol. Genet., April 15, 2006; 15(suppl_1): R45 - R49. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
P. Guarino, D. Elbourne, J. Carpenter, and P. Peduzzi Consumer involvement in consent document development: a multicenter cluster randomized trial to assess study participants' understanding Clinical Trials, February 1, 2006; 3(1): 19 - 30. [Abstract] [PDF]
|
|
|
|
 |
|
 D N Shaffer, V N Yebei, J B Ballidawa, J E Sidle, J Y Greene, E M Meslin, S J N Kimaiyo, and W M Tierney Equitable treatment for HIV/AIDS clinical trial participants: a focus group study of patients, clinician researchers, and administrators in western Kenya J. Med. Ethics, January 1, 2006; 32(1): 55 - 60. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
N. Dickert and J. Sugarman Ethical Goals of Community Consultation in Research Am J Public Health, July 1, 2005; 95(7): 1123 - 1127. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 H. Creed-Kanashiro, B. Ore, M. Scurrah, A. Gil, and M. Penny Conducting Research in Developing Countries: Experiences of the Informed Consent Process from Community Studies in Peru J. Nutr., April 1, 2005; 135(4): 925 - 928. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
C. Woodsong and Q. A. Karim A Model Designed to Enhance Informed Consent: Experiences From the HIV Prevention Trials Network Am J Public Health, March 1, 2005; 95(3): 412 - 419. [Abstract] [Full Text] [PDF]
|
|
|
|
|
|
S. C. Quinn Ethics in Public Health Research: Protecting Human Subjects: the Role of Community Advisory Boards Am J Public Health, June 1, 2004; 94(6): 918 - 922. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 Committee on Native American Child Health and Comm Ethical Considerations in Research With Socially Identifiable Populations Pediatrics, January 1, 2004; 113(1): 148 - 151. [Abstract] [Full Text] [PDF]
|
|
|
|
 |
|
 B. Lo and R. Bayer Establishing ethical trials for treatment and prevention of AIDS in developing countries BMJ, August 9, 2003; 327(7410): 337 - 339. [Full Text] [PDF]
|
|
|
|
 |
|
 B. Caballero Ethical issues for collaborative research in developing countries Am. J. Clinical Nutrition, October 1, 2002; 76(4): 717 - 720. [Full Text] [PDF]
|
|
| HOME | HELP | FEEDBACK | SUBSCRIPTIONS | ARCHIVE | SEARCH | TABLE OF CONTENTS |
