HOME HELP FEEDBACK SUBSCRIPTIONS ARCHIVE SEARCH TABLE OF CONTENTS		QUICK SEARCH:   [advanced] Author: Keyword(s): Year:  Vol:  Page:

This Article Full Text (PDF) Submit a response Purchase Article View Shopping Cart Alert me when this article is cited Alert me when eLetters are posted Alert me if a correction is posted Services Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Download to citation manager Citing Articles Citing Articles via HighWire Citing Articles via Google Scholar Google Scholar Articles by Schuett, V E Articles by Brown, E S Search for Related Content PubMed PubMed Citation Articles by Schuett, V E Articles by Brown, E S

Diet discontinuation policies and practices of PKU clinics in the United States.

V E Schuett, R F Gurda and E S Brown

Marked diversity in policies and practices for discontinuation of the PKU diet in the U.S. was found in a nationwide survey. Seventy-two of the 78 identified clinical centers treating PKU provided data. No clinicians are currently considering diet discontinuation at ages earlier than their present policy or practice. A definite trend toward later discontinuation of diet was identified. A few clinicians have always recommended indefinite diet continuation while many clinics have experience with children ages 9--12 who have discontinued the diet. Clinics with seven or more children off diet in this age range are significantly more likely than smaller clinics to be considering a later age for diet discontinuation. There were 151 children approximately age 10 or older, who remain on a low phenylalanine diet. These children are followed by 29 clinics, but over one-half of them are followed by five clinics which have had long-standing policies of indefinite diet continuation. Factors associated with success in long-term management are a firm clinic policy supporting continued diet treatment; frequent, supportive contacts with the family; open discussion by staff with families and establishment of a trusting relationship; teaching children to accept responsibility for diet management from an early age.

This article has been cited by other articles:

				J. A. Mennella, C. E. Griffin, and G. K. Beauchamp Flavor Programming During Infancy Pediatrics, April 1, 2004; 113(4): 840 - 845. [Abstract] [Full Text] [PDF]

				Barriers to Dietary Control Among Pregnant Women With Phenylketonuria--United States, 1998-2000 JAMA, March 13, 2002; 287(10): 1258 - 1259. [Full Text] [PDF]

				L. G Greeves, C. C Patterson, D. J Carson, R. Thom, M. C Wolfenden, J. Zschocke, C. A Graham, N. C Nevin, and E. R Trimble Effect of genotype on changes in intelligence quotient after dietary relaxation in phenylketonuria and hyperphenylalaninaemia Arch. Dis. Child., March 1, 2000; 82(3): 216 - 221. [Abstract] [Full Text]